Finding support with POI in the digital space with Anita Elawure
In this inspiring episode, Dr Louise Newson talks to Anita Elawure, a women’s health advocate, who shares her startingly honest experience of Premature Ovarian Insufficiency since she was a teenager. After many years of trying to ignore her situation, she began to look into what it really meant, for her fertility and the impact of living in a postmenopausal state for the rest of her life.
Anita decided to create a platform for her to share her experiences, in the hope that she and others wouldn’t feel so alone, and provide a safe place that offered support and learning from others going through POI. Eighteen months ago, Anita founded Blossom Living with POI and, as her page says, “You have me. I have you. Together we blossom.”
Anita’s top 3 tips:
- If you’re at the start of a journey with POI, find your support system. Get someone you can rely on emotionally, that can come to appointments with you or help you do research, because it’s so important.
- If you know someone facing POI, be there for them, tell them you’re here for them and ask what you can do to help.
- Sometimes it might feel like you’re going crazy. It’s OK. You’re not going crazy and your feelings are valid. Find ways to express yourself and take one day at a time. Advocate for yourself, understand your treatments, and know what you need to take care of yourself.